Making Clinical Trials Easier to Reach and Easier to Live Through When I first tried to join a clinical trial, I had no idea how much time, travel, and hope it took. I drove to another state three times, chasing a chance at life.The first two trips ended in disappointment, a quiet, heartbreaking “no.” By the third, I was exhausted and scared, but hope wouldn’t let me stop. That final trip changed everything. It gave me my second chance at life . My daughter took time off work

When One Patient Reaches Out, We All Learn Something There’s something about walking beside another patient that opens your eyes all over...

💔 A Moment I’ll Never Forget. Right before I went into hospice, I could feel my body getting weaker every day. Still, I tried to keep...

I spent two years on hospice  because my tricuspid valve disease had no good options. Surgery wasn’t possible for me, medicines weren’t...

We are living in an extraordinary era for medicine. Every day, it seems we hear about new breakthroughs, from revolutionary medical...

This isn’t just a story about heart disease. It’s a story about hope —and how a clinical trial saved my life and gave me a brand-new...

Why does care disappear when we need it most?The system stops at the procedure. We don’t. They saved my life—and then handed me discharge...

How Pandemic Policy Redefined the Role of Family Caregivers I want to talk about a group of people who rarely get the spotlight but...

Why the people deciding your treatment aren’t the ones trained to treat you. Right?! It’s absolutely wild. Your medically trained doctor,...

Advocacy wasn’t the plan—but it became my purpose. Advocacy is deeply personal for me. I’m a two-year hospice survivor living with...

Sometimes, the body whispers before it screams. Heart failure isn’t just “your heart is not working.” It’s your lungs gasping. It’s your...

I talk a lot about second chances—because I’m living proof they exist. But the facts are, I didn’t get here on grit alone. It took a...

Questions Every Doctor Should Be Asked—Before You Trust Them With Your Care I can’t tell you how many times I’ve been let down by a...

Why am I talking about Tricuspid Valve Regurgitation (TVR)? Because talking about it creates change.Because sharing our stories makes...

Some stories don’t end. They evolve—with every scar, every stumble, and every ounce of strength it takes to keep going. t’s strange what...

My Heart Story, Their Health Policy Living with severe tricuspid regurgitation (TR) isn’t just challenging—it’s exhausting, isolating,...

I Had No Idea My Story Would Matter This Much I didn’t choose to become a patient pioneer out of bravery. I said yes to a clinical trial...

Dr. Beglin sent an urgent referral for an ECHO this week. Here’s why that matters… Even though I’m starting to physically feel a bit...

Because being worn down doesn’t mean we’re worn out. There are some things in life you don’t understand until you’ve lived them. Like how...

The heart doesn’t lie. It just waits patiently for you to hear it. I used to think my emotions were just background noise—something to be...