The invitation that changed everything. Because sometimes, the seat at the table is the miracle. I’m so excited! We are headed to Dublin, Ireland  for the #GHHUnite Summit 🌍  The Global Heart Hub brings together people from all over the world who care about heart health — patients, caregivers, doctors, and researchers. We come together to learn, share ideas, and make sure patients’ voices are heard. 💫 Why This Means So Much It’s hard to describe what this invitation means t

Making Clinical Trials Easier to Reach and Easier to Live Through When I first tried to join a clinical trial, I had no idea how much time, travel, and hope it took. I drove to another state three times, chasing a chance at life.The first two trips ended in disappointment, a quiet, heartbreaking “no.” By the third, I was exhausted and scared, but hope wouldn’t let me stop. That final trip changed everything. It gave me my second chance at life . My daughter took time off work

January 2026 marks the start of my fifth year living with the EVOQUE tricuspid valve, which I received through the TRISCEND II...

When One Patient Reaches Out, We All Learn Something There’s something about walking beside another patient that opens your eyes all over...

Have you ever sat in a doctor’s office, listening to numbers and percentages, and thought, What does that actually mean for me? I’ve been...

A reminder that every reaction, emotion, and question tells a story worth hearing. There's a moment in every care journey when you feel...

The unseen moments that define what it means to keep going. At one point in my journey, my whole life felt ruled by lab results. Every...

A look at the real truth of living and sometimes laughing through hospice. When I was in hospice, I kept a diary. It became my way to...

Walking side by side through surgery, caregiving, and hard choices. I had posted previously about testing positive for the BRCA2 gene ....

Giving words to the worries I carried inside. I talk a lot about hope and second chances, but the truth is I carry fears with me too....

There are hours you can count and hours you can’t,  the kind that fold into one another until days feel like a single long breath. I...

The words hit you like a wave: “We’ve run all the tests, and we just don’t know what’s wrong.” For a long time, I thought those words...

When my heart starts to race or flutter, it can sometimes stop me in my tracks. It’s like my whole day suddenly changes. Fear shows up...

Living through a trial taught me the truth and why patients need to be heard . I never gave clinical trials much thought. In my mind,...

💔 A Moment I’ll Never Forget. Right before I went into hospice, I could feel my body getting weaker every day. Still, I tried to keep...

I spent two years on hospice  because my tricuspid valve disease had no good options. Surgery wasn’t possible for me, medicines weren’t...

How Heart Valve Disease Taught Me to Listen to My Body's Other Rhythms Hey everyone, you know I'm a big advocate for heart valve disease...

We are living in an extraordinary era for medicine. Every day, it seems we hear about new breakthroughs, from revolutionary medical...

When new trial results are announced, the headlines often sound hopeful: “this treatment helped most patients.” But averages only tell...

Data Shapes the Plan. Doctors Shape the Outcome. AI helped map my heart during my EVOQUE valve procedure —but it didn’t save my life. My...