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My Heart's Journey: Living with AFib and A-flutter
How Heart Valve Disease Taught Me to Listen to My Body's Other Rhythms Hey everyone, you know I'm a big advocate for heart valve disease...
4 days ago2 min read
When “Back to Normal” Doesn’t Happen: The Part of Recovery No One Talks About
Redefining “Normal” After Illness The bridge between real stories and how care should be designed After a major health scare, surgery, or...
Jul 312 min read
From Misquote to Misdiagnosis: How Tori Took Control of Her Medical Story
🫀 Real Advocacy. Real Impact. Tori Lungren’s Two-Story Reminder That Your Voice Might Be the Most Important Tool You Have 🩷 PATIENT...
Jul 223 min read
How Many More Will Die Waiting for a Cure That’s Stuck in Testing?
Every life-saving treatment starts with a clinical trial . You can’t approve a cure no one is willing to test. I didn’t say yes to the...
Jul 172 min read
Patient Responsibility: A Conversation We Need to Have
Being quiet won’t protect you—but being informed just might. If you're anything like me, you didn’t choose this health journey—but here...
Jul 12 min read
The Quiet Side Effects of Survival
Because Some Wounds Don’t Show Up on X-Rays I’ve talked about this before, but I don’t think I realized just how real it was until now....
Jun 262 min read
The Body Doesn’t Lie—But Sometimes Doctors Don’t Listen
Lived Experience Isn’t Optional Data. It’s the Truth You Can’t See in a Test Doctors vs. Patients: Why Being Heard Means Everything in...
Jun 192 min read
💓 One Less Thing to Worry About: My Lp(a) Test Result
Heart stuff is never simple, especially when you’ve walked through it like I have. But sometimes, we get a bit of good news in the...
Jun 42 min read
When Your Doctor Says Yes… But the PBM Says No
Why the people deciding your treatment aren’t the ones trained to treat you. Right?! It’s absolutely wild. Your medically trained doctor,...
May 293 min read
The Struggle to Breathe: Why I Stopped Laughing
Breathing is automatic for most people. For me, it was something I had to think about constantly. I wasn’t wheezing or dramatically...
Apr 22 min read
Risk vs. Reality: The Decision That Saved My Life
Risk vs. Reality: The Fear That Almost Cost Me My Life I understand why people fear clinical trials. The unknown is terrifying. You hear...
Apr 13 min read
New Here? Welcome to the Heart of the Conversation
If you’re new to my page—welcome! I’m so glad you found your way to my little corner of the internet. If this is your first time...
Mar 203 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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