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Medical Innovation Is Moving Fast—But Ethics Needs to Catch Up 🚨
We are living in an extraordinary era for medicine. Every day, it seems we hear about new breakthroughs, from revolutionary medical...
Sep 2, 20253 min read
Why “Averages” Don’t Tell the Whole Story in Clinical Trials
When new trial results are announced, the headlines often sound hopeful: “this treatment helped most patients.” But averages only tell...
Aug 28, 20252 min read
AI Mapped My Heart—But My Doctor Saved it!
Data Shapes the Plan. Doctors Shape the Outcome. AI helped map my heart during my EVOQUE valve procedure —but it didn’t save my life. My...
Aug 26, 20251 min read
From Intensive Follow-Up to Silence
Early follow-ups kept me seen. Then came the silence. As part of an Early Feasibility Study , my first year after receiving a...
Aug 21, 20252 min read
Data Doesn’t Live in This Body—I Do
Without patients, your data is just numbers. Data doesn’t sign consent forms while shaking from exhaustion. Data doesn’t wonder if today...
Aug 19, 20251 min read
When Your Body’s Screaming and No One’s Listening
How a Rare, Overlooked Disease Nearly Took My Life Before My Heart Journey Even Began. Most people have never heard of fibrosing...
Aug 14, 20253 min read
Decoding the Science: A Patient’s View from Inside a Virtual Study
Building a bridge between research language and patient voices. I’m part of a virtual medical study, and it’s been a fascinating...
Aug 12, 20252 min read
Clinical Trials: From Dark Spots to Safety Rules
Learning from the Past to Protect You. We’ve all heard about new medicines that help people live longer and feel better. Some can even...
Aug 5, 20253 min read
When “Back to Normal” Doesn’t Happen: The Part of Recovery No One Talks About
Redefining “Normal” After Illness The bridge between real stories and how care should be designed After a major health scare, surgery, or...
Jul 31, 20252 min read
From Cancer to Comeback: Care partner. Fighter. Gym Partner. Louis Is Doing It All 🫶
From side effects to strength training — Louis is proof that progress is possible. Louis is almost finished with his last month on...
Jul 29, 20252 min read
This Is the Gap No One Wants to Talk About
Why does care disappear when we need it most?The system stops at the procedure. We don’t. They saved my life—and then handed me discharge...
Jul 24, 20252 min read
From Misquote to Misdiagnosis: How Tori Took Control of Her Medical Story
🫀 Real Advocacy. Real Impact. Tori Lungren’s Two-Story Reminder That Your Voice Might Be the Most Important Tool You Have 🩷 PATIENT...
Jul 22, 20253 min read
Not Just Bloating—This Was a Full-Blown Crisis
My scale decided my dose. My labs decided my life. No one prepares you for the mental load of managing fluid overload. Every ounce...
Jul 15, 20252 min read
Diary of a Dying Woman: I Was Drowning From the Inside Out—And No One Believed Me
April 17, 2020 – From my hospice diary: I’m back in the hospital—swollen, tired, and uncomfortable. My legs feel heavy and tight. My feet...
Jul 10, 20252 min read
Held Together by What We’ve Survived
Every scar tells a story worth sharing . Life and advocacy really is like a rubber band ball. Each band is something you’ve lived...
Jun 24, 20252 min read
The Letters I Wrote When I Thought I Was Dying
How hospice taught me to leave a legacy and live one too. When I was in hospice, everything changed. Not just physically, but...
Jun 12, 20252 min read
Left at the Door: The Burden of Caregiving During COVID
How Pandemic Policy Redefined the Role of Family Caregivers I want to talk about a group of people who rarely get the spotlight but...
Jun 11, 20253 min read
This Is What Life After Hospice Looks Like
Advocacy wasn’t the plan—but it became my purpose. Advocacy is deeply personal for me. I’m a two-year hospice survivor living with...
May 28, 20253 min read
💬 Dear Doctors: Stop Telling Women It’s Just Anxiety
Because I almost died from the thing you said was in my head. Let’s talk about the elephant in the exam room.You know the one—where...
May 27, 20253 min read
Two Diagnoses, One Fight: How We Held Each Other Through the Storm
Caregiver and patient. Wife and husband. Fighter and fighter. Some love stories are sweet. Ours is survival. There was a moment—maybe...
May 22, 20252 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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