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No Two Humans Are Alike — So Why Do We Treat Medicine Like They Are?
Your story, your chemistry, your care — no one else’s body works like yours. Have you ever stopped and thought about how no two people are exactly the same?Not even identical twins. We might share the same diagnosis or take the same pill, but inside, our bodies work in their own way.Our genes, hormones, gut bacteria, past illnesses, and even how we handle stress make us unique.That’s what makes life interesting and what also makes medicine complicated. 🧬 Medicine Talks in Av
Dec 42 min read


What Clinical Trial Data Can’t Show — But Patients Can
Because lived experience explains the “why” behind every statistic. ❤️🩹 I can’t shake this one line that keeps echoing in my head: “Data comes alive through a real human story.” ✨ It sounds like something you’d jot down during a meeting about “impact,” right?But honestly… that line sums up my whole life.A little humbling. A little exhausting. And every bit is true. The Two Worlds We All Move Through 🌍 Most of us bounce between two very different worlds. 1. The World of
Nov 253 min read


🚨When the System Makes You Wait for Hope: Surviving the Valley of Death
When I first started speaking up about my story, I had no idea how much it would teach me.I never imagined my journey could be used to highlight gaps in our healthcare system—or to help push for solutions that give patients real hope. 🫸 The Waiting Game The truth is, even after the FDA approves a breakthrough treatment , patients often still have to wait years for Medicare to decide if it will be covered. That waiting period is sometimes called the “valley of death.” I know
Nov 183 min read


✈️ Hope Has Luggage Now
The invitation that changed everything. Because sometimes, the seat at the table is the miracle. I’m so excited! We are headed to Dublin, Ireland for the #GHHUnite Summit 🌍 The Global Heart Hub brings together people from all over the world who care about heart health — patients, caregivers, doctors, and researchers. We come together to learn, share ideas, and make sure patients’ voices are heard. 💫 Why This Means So Much It’s hard to describe what this invitation means t
Oct 303 min read


A Toddler of Fluid? Hospice Diary Note
A look at the real truth of living and sometimes laughing through hospice. When I was in hospice, I kept a diary. It became my way to...
Oct 72 min read


✨ The Silent Fears of a Heart Valve Patient ✨
Giving words to the worries I carried inside. I talk a lot about hope and second chances, but the truth is I carry fears with me too....
Sep 303 min read


My Backyard Therapy ~ a little love letter from my heart to yours
There are hours you can count and hours you can’t, the kind that fold into one another until days feel like a single long breath. I...
Sep 253 min read


What if ‘We don’t know’ isn’t the end of your story — but the beginning?
The words hit you like a wave: “We’ve run all the tests, and we just don’t know what’s wrong.” For a long time, I thought those words...
Sep 232 min read


Medical Innovation Is Moving Fast—But Ethics Needs to Catch Up 🚨
We are living in an extraordinary era for medicine. Every day, it seems we hear about new breakthroughs, from revolutionary medical...
Sep 23 min read


Why “Averages” Don’t Tell the Whole Story in Clinical Trials
When new trial results are announced, the headlines often sound hopeful: “this treatment helped most patients.” But averages only tell...
Aug 282 min read


AI Mapped My Heart—But My Doctor Saved it!
Data Shapes the Plan. Doctors Shape the Outcome. AI helped map my heart during my EVOQUE valve procedure —but it didn’t save my life. My...
Aug 261 min read


From Intensive Follow-Up to Silence
Early follow-ups kept me seen. Then came the silence. As part of an Early Feasibility Study , my first year after receiving a...
Aug 212 min read


From Cancer to Comeback: Care partner. Fighter. Gym Partner. Louis Is Doing It All 🫶
From side effects to strength training — Louis is proof that progress is possible. Louis is almost finished with his last month on...
Jul 292 min read


Diary of a Dying Woman: I Was Drowning From the Inside Out—And No One Believed Me
April 17, 2020 – From my hospice diary: I’m back in the hospital—swollen, tired, and uncomfortable. My legs feel heavy and tight. My feet...
Jul 102 min read


Patient Responsibility: A Conversation We Need to Have
Being quiet won’t protect you—but being informed just might. If you're anything like me, you didn’t choose this health journey—but here...
Jul 12 min read


The Letters I Wrote When I Thought I Was Dying
How hospice taught me to leave a legacy and live one too. When I was in hospice, everything changed. Not just physically, but...
Jun 122 min read


When Your Doctor Says Yes… But the PBM Says No
Why the people deciding your treatment aren’t the ones trained to treat you. Right?! It’s absolutely wild. Your medically trained doctor,...
May 293 min read


Two Diagnoses, One Fight: How We Held Each Other Through the Storm
Caregiver and patient. Wife and husband. Fighter and fighter. Some love stories are sweet. Ours is survival. There was a moment—maybe...
May 222 min read


When the System Doesn’t See You
The Overlooked Reality of How Heart Disease Shows Up in Black Women—and Why It’s Costing Lives I can’t speak for Black women—but I won’t...
Apr 281 min read


Risk vs. Reality: The Decision That Saved My Life
Risk vs. Reality: The Fear That Almost Cost Me My Life I understand why people fear clinical trials. The unknown is terrifying. You hear...
Apr 13 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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