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Medical Innovation Is Moving Fast—But Ethics Needs to Catch Up 🚨
We are living in an extraordinary era for medicine. Every day, it seems we hear about new breakthroughs, from revolutionary medical...
7 days ago3 min read
Healing Didn’t End With the Procedure—It Started With My Story
This isn’t just a story about heart disease. It’s a story about hope —and how a clinical trial saved my life and gave me a brand-new...
Aug 73 min read
This Is the Gap No One Wants to Talk About
Why does care disappear when we need it most?The system stops at the procedure. We don’t. They saved my life—and then handed me discharge...
Jul 242 min read
Left at the Door: The Burden of Caregiving During COVID
How Pandemic Policy Redefined the Role of Family Caregivers I want to talk about a group of people who rarely get the spotlight but...
Jun 113 min read
When Your Doctor Says Yes… But the PBM Says No
Why the people deciding your treatment aren’t the ones trained to treat you. Right?! It’s absolutely wild. Your medically trained doctor,...
May 293 min read
This Is What Life After Hospice Looks Like
Advocacy wasn’t the plan—but it became my purpose. Advocacy is deeply personal for me. I’m a two-year hospice survivor living with...
May 283 min read
Your Heart Talks Through Symptoms—Are You Listening?
Sometimes, the body whispers before it screams. Heart failure isn’t just “your heart is not working.” It’s your lungs gasping. It’s your...
May 212 min read
Real Talk: Building My Second Chance Took a Village
I talk a lot about second chances—because I’m living proof they exist. But the facts are, I didn’t get here on grit alone. It took a...
May 192 min read
The Interview Every Patient Deserves
Questions Every Doctor Should Be Asked—Before You Trust Them With Your Care I can’t tell you how many times I’ve been let down by a...
May 154 min read
From Barely Breathing to Truly Living — Why I Won’t Stay Quiet About TVR
Why am I talking about Tricuspid Valve Regurgitation (TVR)? Because talking about it creates change.Because sharing our stories makes...
May 142 min read
🩺 The Truth About Life After Hospice: Surviving Isn’t the Same as Healing
Some stories don’t end. They evolve—with every scar, every stumble, and every ounce of strength it takes to keep going. t’s strange what...
May 133 min read
📰 From Bellingham to Australia AGAIN: My Story Travels
My Heart Story, Their Health Policy Living with severe tricuspid regurgitation (TR) isn’t just challenging—it’s exhausting, isolating,...
May 72 min read
I Just Wanted to Survive — How Surviving Turned Into a Mission
I Had No Idea My Story Would Matter This Much I didn’t choose to become a patient pioneer out of bravery. I said yes to a clinical trial...
Apr 242 min read
💬 My Symptoms Spoke—And So Did My Doctor: Why I’m Getting an Urgent ECHO
Dr. Beglin sent an urgent referral for an ECHO this week. Here’s why that matters… Even though I’m starting to physically feel a bit...
Apr 152 min read
Weathered, Not Weak: Let’s Call It What It Is—Weathering and Why We Need to Talk About It
Because being worn down doesn’t mean we’re worn out. There are some things in life you don’t understand until you’ve lived them. Like how...
Apr 103 min read
More Than a Beat: The Truth My Heart Knew Before My Mind Caught Up
The heart doesn’t lie. It just waits patiently for you to hear it. I used to think my emotions were just background noise—something to be...
Apr 93 min read
From Forgotten to Front Page: CMS Approves National Coverage for Tricuspid Valve Replacement
There was a time—not that long ago—when the tricuspid valve was known as the forgotten valve . If you had severe tricuspid regurgitation...
Apr 31 min read
Risk vs. Reality: The Decision That Saved My Life
Risk vs. Reality: The Fear That Almost Cost Me My Life I understand why people fear clinical trials. The unknown is terrifying. You hear...
Apr 13 min read
This Setback Hit Harder Than I Expected. Getting Back to Movement After Illness—With AFib, and With Louis
I thought I was ready. After weeks of battling a lung infection, the flu, and a rough patch of AFib (atrial fibrillation), I had my mind...
Mar 283 min read
Celebrating Progress & Change: Louis’ Final Phase & Dr. Saleh’s Farewell
Louis’ Health Update & A Farewell to Dr. Saleh Today was a day of transition— one filled with both progress and goodbyes . While Louis is...
Mar 253 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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