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This Is What Life After Hospice Looks Like
Advocacy wasn’t the plan—but it became my purpose. Advocacy is deeply personal for me. I’m a two-year hospice survivor living with...
2 days ago3 min read
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Your Heart Talks Through Symptoms—Are You Listening?
Sometimes, the body whispers before it screams. Heart failure isn’t just “your heart is not working.” It’s your lungs gasping. It’s your...
May 212 min read
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Real Talk: Building My Second Chance Took a Village
I talk a lot about second chances—because I’m living proof they exist. But the facts are, I didn’t get here on grit alone. It took a...
May 192 min read
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The Interview Every Patient Deserves
Questions Every Doctor Should Be Asked—Before You Trust Them With Your Care I can’t tell you how many times I’ve been let down by a...
May 154 min read
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From Barely Breathing to Truly Living — Why I Won’t Stay Quiet About TVR
Why am I talking about Tricuspid Valve Regurgitation (TVR)? Because talking about it creates change.Because sharing our stories makes...
May 142 min read
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🩺 The Truth About Life After Hospice: Surviving Isn’t the Same as Healing
Some stories don’t end. They evolve—with every scar, every stumble, and every ounce of strength it takes to keep going. t’s strange what...
May 133 min read
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📰 From Bellingham to Australia: My Story Travels
My Heart Story, Their Health Policy Living with severe tricuspid regurgitation (TR) isn’t just challenging—it’s exhausting, isolating,...
May 72 min read
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I Just Wanted to Survive — How Surviving Turned Into a Mission
I Had No Idea My Story Would Matter This Much I didn’t choose to become a patient pioneer out of bravery. I said yes to a clinical trial...
Apr 242 min read
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💬 My Symptoms Spoke—And So Did My Doctor: Why I’m Getting an Urgent ECHO
Dr. Beglin sent an urgent referral for an ECHO this week. Here’s why that matters… Even though I’m starting to physically feel a bit...
Apr 152 min read
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Weathered, Not Weak: Let’s Call It What It Is—Weathering and Why We Need to Talk About It
Because being worn down doesn’t mean we’re worn out. There are some things in life you don’t understand until you’ve lived them. Like how...
Apr 103 min read
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More Than a Beat: The Truth My Heart Knew Before My Mind Caught Up
The heart doesn’t lie. It just waits patiently for you to hear it. I used to think my emotions were just background noise—something to be...
Apr 93 min read
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From Forgotten to Front Page: CMS Approves National Coverage for Tricuspid Valve Replacement
There was a time—not that long ago—when the tricuspid valve was known as the forgotten valve . If you had severe tricuspid regurgitation...
Apr 31 min read
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Risk vs. Reality: The Decision That Saved My Life
Risk vs. Reality: The Fear That Almost Cost Me My Life I understand why people fear clinical trials. The unknown is terrifying. You hear...
Apr 13 min read
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This Setback Hit Harder Than I Expected. Getting Back to Movement After Illness—With AFib, and With Louis
I thought I was ready. After weeks of battling a lung infection, the flu, and a rough patch of AFib (atrial fibrillation), I had my mind...
Mar 283 min read
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Celebrating Progress & Change: Louis’ Final Phase & Dr. Saleh’s Farewell
Louis’ Health Update & A Farewell to Dr. Saleh Today was a day of transition— one filled with both progress and goodbyes . While Louis is...
Mar 253 min read
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New Here? Welcome to the Heart of the Conversation
If you’re new to my page—welcome! I’m so glad you found your way to my little corner of the internet. If this is your first time...
Mar 203 min read
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Overcoming Mental Resistance: How I Learned to Show Up Every Day
It wasn’t just my motivation that had weakened—my mind had taken a hit, too. The exhaustion, the frustration, the doubts—they weighed on...
Mar 173 min read
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Knowledge is Power: My BRCA Testing Journey
Breaking the Cycle: My Journey with Genetic Testing and Cancer Risk Cancer isn’t just part of my family’s history—it’s shaped our...
Mar 133 min read
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833 Days: A Tricuspid Valve Miracle
833 days —days filled with struggle, uncertainty, and a constant battle between giving up and pushing forward. People often ask me, “Was...
Mar 113 min read
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When Your Body Doesn’t Fit the Medical Mold: Why Healthcare Gaps Go Beyond Race and Gender
When Your Body Doesn’t Fit the Medical Mold: Why Healthcare Gaps Go Beyond Race and Gender When people talk about healthcare disparities,...
Mar 63 min read
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"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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