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The Day My Body Gave Out in a Grocery Store
💔 A Moment I’ll Never Forget. Right before I went into hospice, I could feel my body getting weaker every day. Still, I tried to keep...
Sep 11, 20251 min read
The Guinea Pig Myth: Myths vs. Facts Every Patient Should Know.
I spent two years on hospice because my tricuspid valve disease had no good options. Surgery wasn’t possible for me, medicines weren’t...
Sep 9, 20253 min read
Why “Averages” Don’t Tell the Whole Story in Clinical Trials
When new trial results are announced, the headlines often sound hopeful: “this treatment helped most patients.” But averages only tell...
Aug 28, 20252 min read
AI Mapped My Heart—But My Doctor Saved it!
Data Shapes the Plan. Doctors Shape the Outcome. AI helped map my heart during my EVOQUE valve procedure —but it didn’t save my life. My...
Aug 26, 20251 min read
From Intensive Follow-Up to Silence
Early follow-ups kept me seen. Then came the silence. As part of an Early Feasibility Study , my first year after receiving a...
Aug 21, 20252 min read
Data Doesn’t Live in This Body—I Do
Without patients, your data is just numbers. Data doesn’t sign consent forms while shaking from exhaustion. Data doesn’t wonder if today...
Aug 19, 20251 min read
When Your Body’s Screaming and No One’s Listening
How a Rare, Overlooked Disease Nearly Took My Life Before My Heart Journey Even Began. Most people have never heard of fibrosing...
Aug 14, 20253 min read
Decoding the Science: A Patient’s View from Inside a Virtual Study
Building a bridge between research language and patient voices. I’m part of a virtual medical study, and it’s been a fascinating...
Aug 12, 20252 min read
Healing Didn’t End With the Procedure—It Started With My Story
This isn’t just a story about heart disease. It’s a story about hope —and how a clinical trial saved my life and gave me a brand-new...
Aug 7, 20253 min read
Clinical Trials: From Dark Spots to Safety Rules
Learning from the Past to Protect You. We’ve all heard about new medicines that help people live longer and feel better. Some can even...
Aug 5, 20253 min read
When “Back to Normal” Doesn’t Happen: The Part of Recovery No One Talks About
Redefining “Normal” After Illness The bridge between real stories and how care should be designed After a major health scare, surgery, or...
Jul 31, 20252 min read
This Is the Gap No One Wants to Talk About
Why does care disappear when we need it most?The system stops at the procedure. We don’t. They saved my life—and then handed me discharge...
Jul 24, 20252 min read
How Many More Will Die Waiting for a Cure That’s Stuck in Testing?
Every life-saving treatment starts with a clinical trial . You can’t approve a cure no one is willing to test. I didn’t say yes to the...
Jul 17, 20252 min read
Not Just Bloating—This Was a Full-Blown Crisis
My scale decided my dose. My labs decided my life. No one prepares you for the mental load of managing fluid overload. Every ounce...
Jul 15, 20252 min read
Diary of a Dying Woman: I Was Drowning From the Inside Out—And No One Believed Me
April 17, 2020 – From my hospice diary: I’m back in the hospital—swollen, tired, and uncomfortable. My legs feel heavy and tight. My feet...
Jul 10, 20252 min read
My Rent or My Medicine: No One Should Have to Choose
People are breaking down in Facebook comments—because they can’t afford their Eliquis. It’s hard to read.Some are skipping doses.Others...
Jul 8, 20252 min read
Women Were Left Out of Research—And We're Still Paying the Price
Let’s talk about something that doesn’t get enough attention. Before 1993, most women weren’t included in medical research. Not because...
Jul 3, 20252 min read
Patient Responsibility: A Conversation We Need to Have
Being quiet won’t protect you—but being informed just might. If you're anything like me, you didn’t choose this health journey—but here...
Jul 1, 20252 min read
The Quiet Side Effects of Survival
Because Some Wounds Don’t Show Up on X-Rays I’ve talked about this before, but I don’t think I realized just how real it was until now....
Jun 26, 20252 min read
Held Together by What We’ve Survived
Every scar tells a story worth sharing . Life and advocacy really is like a rubber band ball. Each band is something you’ve lived...
Jun 24, 20252 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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