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The Hard Questions We Don’t Talk About Enough 💬
❤️🩹 A patient’s perspective from someone who lived early feasibility When you’re one of the first people to receive a new heart valve, you learn pretty quickly that innovation is both a miracle and an evolving standard of care. I was an early feasibility EVOQUE patient — part of the group whose outcomes helped shape future FDA approval. The valve saved my life. But being in that first wave also meant stepping into a space where long-term answers were still being written. Th
4 hours ago3 min read


📝 Show-and-Tell: What Patients Really Need to See Before Saying 'Yes' to a Clinical Trial
Some days, clinical trials remind me of show-and-tell back in kindergarten. Remember that? You didn’t just talk about your awesome toy — you brought it in! You showed it. You let people hold it, look at it, and ask questions to really understand what made it special. Honestly… I wish clinical trials were more like that. Before anyone tries to “explain the benefits” or hands me a huge stack of papers with words I can barely pronounce, I want to see — really see — what this t
Dec 93 min read


Trust Yourself: Kayla’s Journey Through Tricuspid Valve Disease
Because sometimes, healing begins when you start believing yourself. Some stories remind us just how much strength it takes to keep showing up when answers don’t come easily.Kayla’s journey with tricuspid valve disease began long before her diagnosis had a name — and her perseverance through years of uncertainty is a powerful reminder that advocacy often starts from the heart. A devoted wife, mother, and HeartBridge Collective member, Kayla has faced more than a decade of cha
Dec 22 min read


What Clinical Trial Data Can’t Show — But Patients Can
Because lived experience explains the “why” behind every statistic. ❤️🩹 I can’t shake this one line that keeps echoing in my head: “Data comes alive through a real human story.” ✨ It sounds like something you’d jot down during a meeting about “impact,” right?But honestly… that line sums up my whole life.A little humbling. A little exhausting. And every bit is true. The Two Worlds We All Move Through 🌍 Most of us bounce between two very different worlds. 1. The World of
Nov 253 min read


Not a Lab Rat. A Patient With a Voice.
Living through a trial taught me the truth and why patients need to be heard . I never gave clinical trials much thought. In my mind,...
Sep 162 min read


Healing Didn’t End With the Procedure—It Started With My Story
This isn’t just a story about heart disease. It’s a story about hope —and how a clinical trial saved my life and gave me a brand-new...
Aug 73 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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