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The Hard Questions We Don’t Talk About Enough 💬
❤️🩹 A patient’s perspective from someone who lived early feasibility When you’re one of the first people to receive a new heart valve, you learn pretty quickly that innovation is both a miracle and an evolving standard of care. I was an early feasibility EVOQUE patient — part of the group whose outcomes helped shape future FDA approval. The valve saved my life. But being in that first wave also meant stepping into a space where long-term answers were still being written. Th
4 hours ago3 min read


📝 Show-and-Tell: What Patients Really Need to See Before Saying 'Yes' to a Clinical Trial
Some days, clinical trials remind me of show-and-tell back in kindergarten. Remember that? You didn’t just talk about your awesome toy — you brought it in! You showed it. You let people hold it, look at it, and ask questions to really understand what made it special. Honestly… I wish clinical trials were more like that. Before anyone tries to “explain the benefits” or hands me a huge stack of papers with words I can barely pronounce, I want to see — really see — what this t
Dec 93 min read


What Clinical Trial Data Can’t Show — But Patients Can
Because lived experience explains the “why” behind every statistic. ❤️🩹 I can’t shake this one line that keeps echoing in my head: “Data comes alive through a real human story.” ✨ It sounds like something you’d jot down during a meeting about “impact,” right?But honestly… that line sums up my whole life.A little humbling. A little exhausting. And every bit is true. The Two Worlds We All Move Through 🌍 Most of us bounce between two very different worlds. 1. The World of
Nov 253 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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