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💥 If IRBs Want to Protect Us, They Need to Hear Us — All of Us
I’ve been thinking about something we don’t talk about enough in the research world: Sometimes the very systems meant to protect us end up silencing us . We see it with pregnant women being excluded from studies. But let’s be honest — it doesn’t stop there. 🚫 Safety Shouldn’t Mean Exclusion IRBs (Institutional Review Boards) exist to keep people safe. I respect that. Their mission is critical. But safety shouldn’t mean exclusion. And protection shouldn’t mean making decisi
Nov 203 min read


🚨When the System Makes You Wait for Hope: Surviving the Valley of Death
When I first started speaking up about my story, I had no idea how much it would teach me.I never imagined my journey could be used to highlight gaps in our healthcare system—or to help push for solutions that give patients real hope. 🫸 The Waiting Game The truth is, even after the FDA approves a breakthrough treatment , patients often still have to wait years for Medicare to decide if it will be covered. That waiting period is sometimes called the “valley of death.” I know
Nov 183 min read


Medical Innovation Is Moving Fast—But Ethics Needs to Catch Up 🚨
We are living in an extraordinary era for medicine. Every day, it seems we hear about new breakthroughs, from revolutionary medical...
Sep 23 min read


You Don’t Know What You Don’t Know—And That’s Dangerous
I didn’t know heart disease kills more women than all cancers combined . I didn’t know it’s the #1 killer of women , taking one woman...
Feb 132 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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