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💊 When the Data Becomes Personal: What a 0.25 mg Dose Means After 38 Years
Sometimes healing isn’t loud — it’s one quiet change that means everything. When Dr. Beglin told me he was cutting my BUMEX to just 0.25 mg every other day , I sat there shocked. I haven’t been without a diuretic since 1987 , when I was diagnosed with idiopathic fibrosing mediastinitis — a rare disease of unknown causes, that creates scar tissue to grow inside the chest, squeezing the lungs and blood vessels and making it harder for my heart to work. Back then, medicine was
Nov 62 min read


I Saved My Breath to Survive
I stayed silent just to keep breathing. Today, my words carry purpose. When you’re fighting for your life, you speak in survival.You write in whispers.You breathe between words and sometimes between syllables. Talking was hard and some days, impossible.I’d pause mid-word just to catch air, or stay quiet to save what little I had.I had to choose them carefully, like spending the last coins of breath! Back then, breathing took all my focus, so I spoke in pieces.Short. Choppy.
Nov 42 min read


Throwback to 2021: 34 Days Post Valve Replacement & Making Memories with Nahla
There are moments in life that stick with you, not because they were grand or planned, but because they were real . Because they reminded...
Mar 272 min read


833 Days: A Tricuspid Valve Miracle
833 days —days filled with struggle, uncertainty, and a constant battle between giving up and pushing forward. People often ask me, “Was...
Mar 113 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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