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The Heart’s Paper Trail: When Your Medical Record Finally Catches Up to Your Body
They say a picture is worth a thousand words. But when you live with heart valve disease, one medical note can explain years of symptoms. For a long time, I felt my body changing. I was tired all the time. My chest felt heavy. The swelling kept getting worse. But the focus stayed on my past surgeries and my pulmonary arteries. Meanwhile, something else was quietly progressing, severe tricuspid regurgitation. My echocardiograms showed moderate leakage in 2005. By 2014, it was
Feb 262 min read


When Rare Cancers Damage the Heart Valves (Carcinoid Heart Disease) and Why This Feels Personal ❤️🩹🥑
Why awareness, earlier answers, and patient voices matter in carcinoid heart disease and valve care ✨ What I Learned Today I love sharing the things I learn along the way, especially when it’s something I wish patients were told sooner. Today’s lesson? How some rare cancers can damage the heart long before anyone realizes what’s happening and why this matters more than people think! Some rare cancers, like carcinoid tumors, can release too much serotonin into the bloodstream.
Dec 18, 20254 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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