Mary's Therapy Room wasn't a room at all. It was our backyard. No therapist ever sat there with me. There was no couch, nothing official about it at all. Just the deck, the open sky, and however many hours I needed on any given day. It was where I went to ground myself in nature the only kind of therapy available to me during the two years I spent in hospice, when my heart was failing and no one had an answer for how to fix it. I spent countless hours out there. Praying. Barg

At HeartBridge Collective (HBC) , we support patients and caregivers alike — because rare disease is never a solo journey. It affects the whole household, the whole family, and often the same two people day after day. When a rare disease is discussed, the focus is usually on the patient. But standing right beside them is a caregiver whose physical, emotional, and mental health are also on the line. Research now confirms what families have been saying for years: the emotiona

The words hit you like a wave: “We’ve run all the tests, and we just don’t know what’s wrong.” For a long time, I thought those words...

Breathing is automatic for most people. For me, it was something I had to think about constantly. I wasn’t wheezing or dramatically...