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CLL Update: Why Louis and His Doctor Chose Watchful Waiting After His Latest Biopsy
Some seasons in caregiving feel like you’re holding your breath… and then finally letting out a slow exhale when you hear, “He’s doing okay.” That’s where we are right now. Louis had another round of scans this fall. The good news? Most of the swollen lymph nodes in his body have stayed the same or gotten smaller. The only change was under his left arm, where the nodes got bigger — so his doctor did a biopsy to check everything. The biopsy confirmed his CLL is still present,
Dec 30, 20252 min read


What Clinical Trial Data Can’t Show — But Patients Can
Because lived experience explains the “why” behind every statistic. ❤️🩹 I can’t shake this one line that keeps echoing in my head: “Data comes alive through a real human story.” ✨ It sounds like something you’d jot down during a meeting about “impact,” right?But honestly… that line sums up my whole life.A little humbling. A little exhausting. And every bit is true. The Two Worlds We All Move Through 🌍 Most of us bounce between two very different worlds. 1. The World of
Nov 25, 20253 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
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