Most people know me for heart valve advocacy. That is the space I’ve lived in for years; I know the systems, I know the language, and I know exactly how to fight within them. But I’ve learned that nothing truly prepares you for the moment the fight shifts to your child. Recently, I stepped into a new kind of caregiving role with my daughter, Azure. In June of 2025, Azure learned she carries the BRCA genetic mutation, which increases her risk for certain cancers by limiting th

Some seasons in caregiving feel like you’re holding your breath… and then finally letting out a slow exhale when you hear, “He’s doing okay.” That’s where we are right now. Louis had another round of scans this fall. The good news? Most of the swollen lymph nodes in his body have stayed the same or gotten smaller. The only change was under his left arm, where the nodes got bigger — so his doctor did a biopsy to check everything. The biopsy confirmed his CLL is still present,

Because lived experience explains the “why” behind every statistic.   ❤️‍🩹 I can’t shake this one line that keeps echoing in my head: “Data comes alive through a real human story.”  ✨ It sounds like something you’d jot down during a meeting about “impact,” right?But honestly… that line sums up my whole life.A little humbling. A little exhausting. And every bit is true. The Two Worlds We All Move Through 🌍 Most of us bounce between two very different worlds. 1. The World of