Most people know me for heart valve advocacy. That is the space I’ve lived in for years; I know the systems, I know the language, and I know exactly how to fight within them. But I’ve learned that nothing truly prepares you for the moment the fight shifts to your child. Recently, I stepped into a new kind of caregiving role with my daughter, Azure. In June of 2025, Azure learned she carries the BRCA genetic mutation, which increases her risk for certain cancers by limiting th
3 days ago5 min read
"If no one else was telling their story, then maybe I needed to tell mine. And maybe, just maybe, that would give others permission to share theirs too."
