Your story, your chemistry, your care — no one else’s body works like yours. Have you ever stopped and thought about how no two people are exactly the same?Not even identical twins. We might share the same diagnosis or take the same pill, but inside, our bodies work in their own way.Our genes, hormones, gut bacteria, past illnesses, and even how we handle stress make us unique.That’s what makes life interesting and what also makes medicine complicated. 🧬 Medicine Talks in Av

When I first started speaking up about my story, I had no idea how much it would teach me.I never imagined my journey could be used to highlight gaps in our healthcare system—or to help push for solutions that give patients real hope. 🫸 The Waiting Game The truth is, even after the FDA approves a breakthrough treatment , patients often still have to wait years for Medicare to decide if it will be covered. That waiting period is sometimes called the “valley of death.” I know

The invitation that changed everything. Because sometimes, the seat at the table is the miracle. I’m so excited! We are headed to Dublin, Ireland for the #GHHUnite Summit 🌍 The Global Heart Hub brings together people from all over the world who care about heart health — patients, caregivers, doctors, and researchers. We come together to learn, share ideas, and make sure patients’ voices are heard. 💫 Why This Means So Much It’s hard to describe what this invitation means t

When One Patient Reaches Out, We All Learn Something There’s something about walking beside another patient that opens your eyes all over...

Have you ever sat in a doctor’s office, listening to numbers and percentages, and thought, What does that actually mean for me? I’ve been...

A reminder that every reaction, emotion, and question tells a story worth hearing. There's a moment in every care journey when you feel...

The unseen moments that define what it means to keep going. At one point in my journey, my whole life felt ruled by lab results. Every...

A look at the real truth of living and sometimes laughing through hospice. When I was in hospice, I kept a diary. It became my way to...

There are hours you can count and hours you can’t, the kind that fold into one another until days feel like a single long breath. I...

The words hit you like a wave: “We’ve run all the tests, and we just don’t know what’s wrong.” For a long time, I thought those words...

💔 A Moment I’ll Never Forget. Right before I went into hospice, I could feel my body getting weaker every day. Still, I tried to keep...

I spent two years on hospice because my tricuspid valve disease had no good options. Surgery wasn’t possible for me, medicines weren’t...

How Heart Valve Disease Taught Me to Listen to My Body's Other Rhythms Hey everyone, you know I'm a big advocate for heart valve disease...

When new trial results are announced, the headlines often sound hopeful: “this treatment helped most patients.” But averages only tell...

Early follow-ups kept me seen. Then came the silence. As part of an Early Feasibility Study , my first year after receiving a...

Learning from the Past to Protect You. We’ve all heard about new medicines that help people live longer and feel better. Some can even...

Why does care disappear when we need it most?The system stops at the procedure. We don’t. They saved my life—and then handed me discharge...

🫀 Real Advocacy. Real Impact. Tori Lungren’s Two-Story Reminder That Your Voice Might Be the Most Important Tool You Have 🩷 PATIENT...

People are breaking down in Facebook comments—because they can’t afford their Eliquis. It’s hard to read.Some are skipping doses.Others...

Let’s talk about something that doesn’t get enough attention. Before 1993, most women weren’t included in medical research. Not because...